MLD onsight at Alfred I. DuPont
A very brief update just to let everyone know that MLD met with Dr. Bober and rest of the team at the Alfred I. DuPont Hospital for Children this week to put final touches on the Natural History Study. This included completing quality assurance and control paperwork, finalizing elements of the electronic data capture, and other details. Everything is looking great and the study will be starting soon! An update will be provided in the near future regarding enrolment details and exact dates that the study will officially open.
For those who are already signed up through this website, an email with the specific enrolment details will be sent directly to you. For those who have not yet signed up, please do so here.
More information. about the Natural History Study can be found here.